Inspiring you to live well with Parkinson's disease
"For me it began at 27 years of age, a slight tremor in my right pinky finger, just as I was completing my residency in family practice and starting my career as a physician. At first I was more medically intrigued with experiencing a symptom that I had heard so many patients describe. But then my concern grew as the tremor went from sporadic to continuous and that's when I began to experience medicine from the patient's perspective. The frustration at the lack of control I had over my own body, the desperation I felt when told of the diagnosis of Young Onset Parkinson's Disease and the fear of the future. And through it all, relentlessly, the tremor worsened in my right hand, then my right foot, and ultimately progressing to the left side of my body. The effects transcended into my work, my social and family life. It made itself known from the moment I awoken until I fell asleep at night. All during a period of time, that I felt I should have been in the prime of my life.
Adjusting physically and emotionally has been a challenge and now at 43 years of age, I have lived with the challenge of PD for well over a decade. It has been a time of change - change in my body, an increasing tremor among other symptoms and a number of medication trials. Through it all however, life goes on and I've learned that to focus on the negative alone changes you into a person that isn't living life but instead just getting by. At some point you have to surrender your fear of the future and begin living your present. . I now understand that the diagnosis is simply not within my control, but how I face this challenge is mine to determine.
I now focus on my blessings, ones that perhaps I would not have recognized had it not been for this condition. It has also been a wonderful decade heralding the births of my three precious daughters, the strengthening of an already wonderful marriage and the building of a successful career. Now the "why me" has been replaced for the most part by the "why not me". Better me than my children or anyone else that I love. Better me than someone else who has to face this challenge alone. Because that is how I view PD, not as a disease so much as a daily challenge.
And it is not a unique struggle, there are millions of people living with Parkinson's Disease. And that is where my focus lies, on those people suffering the disability that can come with the progression of Parkinson's Disease.
No one really knows what life will bring and although I have a glimpse into what the future holds for me, I am ready to face it head on. To paraphrase the words of Phillips Brooks a noted American clergyman and author, don't pray for an easy life, pray to be a strong person. Words to live by."
Dr. Soania Mathur is a family physician living outside of Toronto, Ontario who had to resign her practice as a result of her Young Onset Parkinson's Disease a full twelve years after her diagnosis at age 27. Now she is a dedicated speaker, writer, educator and Parkinson's advocate. She speaks passionately about the challenges of adjusting physically and emotionally and the coping strategies available to patients.
Dr. Mathur is an active speaker in Canada and the US at patient-directed conferences and also serves as a resource for education projects. She works with The Michael J. Fox foundation for Parkinson’s Research and serves on their Patient Council. She is a member of The Brian Grant Foundation Advisory Board that helps to create educational programming. She is the sole contributor for the About.com Parkinson’s website and a regular contributor to Huffington Post Blog and others.
She is the founder of Designing A Cure Inc. (www.designingacure.com) which was initially created to raise funds directed towards research and awareness of Parkinson's Disease and now serves as a platform to educate and inspire those living with this disease to take charge of their lives, to live well with Parkinson's.
Dr. Mathur has a special interest in helping educate the youngest affected by the stress of this chronic disease. To help facilitate dialogue between children and their loved ones, she has authored two books: “My Grandpa’s Shaky Hands”and “Shaky Hands – A Kid’s Guide To Parkinson’s Disease”
Most importantly, she is the proud mother of three beautiful daughters and married to her loving and supportive husband Arun, a Urologic surgeon.